Friday, March 27, 2015

Parents’ desperate plea for help to treat young son who has condition that means his head has swelled to twice its usual size

The boy whose head won’t stop growing: Parents’ desperate plea for help to treat young son who has condition that means his head has swelled to twice its usual size

  • Toddler's condition has also caused his eyes to drift downwards
  • 1 or 2 in every 1,000 babies born with 'water on the brain'
  • He is the only surviving twin after premature brother died as a baby 
The family of a three-year-old boy whose brain has swelled to twice its normal size have made a desperate appeal for life-saving surgery. 
Cao Pengwei was diagnosed with hydrocephalus - where fluids build up in the brain's chamber - when he was two.
Treatment to slow the swelling has not worked and he must now undergo an operation to drain the fluid from his brain. 
Needs operation: Three-year-old Cao Pengwei could die from hydrocephalus unless his family in China find the money for surgery
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Needs operation: Three-year-old Cao Pengwei could die from hydrocephalus unless his family in China find the money for surgery
His parents, who lost his twin brother when he was three-months-old, told the People's Daily Online cannot afford the surgery after racking up debts of 200,000 yuan (£21,700) on treatment so far.

But the youngster could die unless he has the procedure, which involves inserting a shunt or plastic tube into the brain ventricle or near to the spinal cord, to divert the flow of fluid.

WHAT IS HYDROCEPHALUS?

The condition is caused by excessive accumulation of cerebrospinal fluid in the cavities of the brain, which causes a harmful build up of pressure on brain tissues.
The most obvious symptom is an unusually large head size but there are other symptoms including a downward deviation of the eyes and seizures.
Many children display symptoms that can be mistaken for naughtiness, such as verbal aggression and swearing, hyperactivity, not paying attention and generally unusual behaviour 
Children will often experience learning difficulties.
Cao, whose head measures more than 80cms because of the condition, has had to leave hospital in Jiujiang City, in Xiushui County, twice already because his family could not afford the hospital bills.
Speaking through tears, mum Ding Meiling said it was heartbreaking to watch him suffer.
'I've been worn out by the treatment but I don't want to give up,' she said.
'I don't have any solution now. I hope people with kind hearts can help my son.' 
One to two of every 1,000 babies are born with hydrocephalus, making it as common as Down’s syndrome, according to the Hydrocephalus Association.
Although shunts are permanent, they are prone to infection and blockage, which means patients may require several operations during their lifetime.
Most of those with by the condition have impaired mental and physical ability, although the effects can vary widely.  
Desperate: Cao Pengwei urgently needs to have a shunt fitted on his brain to drain the excess fluid caused by the condition
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Desperate: Cao Pengwei urgently needs to have a shunt fitted on his brain to drain the excess fluid caused by the condition
Brave: The three-year-old needs an operation to drain the fluid from his brain which has caused it to swell to twice its normal size
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Brave: The three-year-old needs an operation to drain the fluid from his brain which has caused it to swell to twice its normal size
'Doctors suggested us to arrange the surgery, but we have no money,' his father said. 
'We are desperately hoping someone could help our son.' Ding adds: 'We'll save him, no matter the cost.'

3 comments:

Anonymous said...

What the he*l is the problem with the 'medical' community? In serious cases such as this one, the operation and whatever is needed should be done - period, and money should be absolutely no concern or issue for the family or a patient. These 'doctors' swear oaths - the 'Hippocratic oath' (http://www.medicinenet.com/script/main/art.asp?articlekey=20909) - and should abide by it, but - they are in the 'business' for wealth increase at whatever cost to the patients. They should receive their 'just reward' for their misplaced priorities. May the selfish injustices and sentences they impose upon their patients come back to rest on them.

Anonymous said...

To Lovemylife - Please consider not using the color yellow for your blog titles, as it is nearly impossible to read, and a reader must highlight the title in an attempt to read what you posted for the title. Please use the traditional dark colors so we can read what your articles are about! Colors like dark black, dark blue, red, dark purple, etc. Thank you.

Anonymous said...

The people such as Bill Gates who say they are helping the children and who have been allowed to accumulate large sums of money will just sit on their silk couch and stuff their face with caviar and Dom perignon. Right now I have prayer I will offer to this family and believe God for a miracle.